We spent the day at the Mayo Clinic and while we don't have FINAL answers we have very good news! IF (and I mean IF) little River Rose has a carnitine deficiency disorder it would be one of the easily manageable kinds (very meaty diet or simple supplement required) and the blessing is that it was caught early. The Docs at Mayo said that of ALL the things that can pop positive on an infant's metabolic screening...this is the "best" one to have.
He also said that once ALL of Mom & River's labs are back, the probability is greater that this minor variety of carnatine disorder is Mom's, than River's (and also easily manageable). River could just be an unafflicted carrier (genetics stuff I don't understand).
I can't describe how relieved we are.
I also can't even begin to describe what your Love, Support and Fellowship meant to me during this time of uncertainty. Each and every one of your words of hope, strength and compassion was a breath from God's Lips to my humbled, frightened, helpless soul.
Regret the past or wish to shut the door on it? If it wasn't for my wretched past I wouldn't know the Joys & Truth of AA.
Glad to hear that Rob, you must be relieved. And the important thing to realize about this is? Don't waste emotional energy worrying. You've got to work the 3rd step on this kinda stuff. It is what is and we'll cross that bridge when it gets here, IF it gets here. Imagine if you'd gotten torqued off enough and drank, later to find out it was minor at worst. That, would really suck.
-- Edited by StPeteDean on Thursday 29th of April 2010 08:13:59 PM
So glad to hear everything is going to be okay for both River and mom... I'm really happy for you and so glad you didn't pick up during such a painful and scary time! You are the bee's knees, Rob! Laurie
So happy for you and your wife, and your precious little River Rose.
Thanks for sharing this us today..well pretty sure as I was reading your Post, I could feel your Joyous, happy and freedom from all the fear you have been in.....all the way out here in California, LOL, now I get it, that was my own happiness and joy and relief for you and your family.
God always does God's part...the part we don't have to do. You did you part and now you can smile. No longer a grimace heh? Celebrate it Rob with your spouse cause we got how you were going thru it but missed her story. It's okay. Celebrate it. I'm stoked for you and River Rose. (((((hugs)))))
